Thursday, September 30, 2010
Thursday, July 15, 2010
MVSA Monthly Meeting
The MVSA will meet Sunday, July 18, 2010 at 2pm. Please come and enjoy fellowship and contribute to the development of this valuable resource.
Tuesday, July 6, 2010
Who Am I
I am someone whose Dreams are the same
Whose colors Different
But I remain the SAME
To be treated as one
and not to be the blame
My wings have grown
My color's will change
So, Who am I?
I am Vitiligo
that will always
remain the same.
Whose colors Different
But I remain the SAME
To be treated as one
and not to be the blame
My wings have grown
My color's will change
So, Who am I?
I am Vitiligo
that will always
remain the same.
Monday, May 24, 2010
Thank's Doc!
The Maryland Vitiligo Support Association would like to thank Raymond Boissy, PhD, President/Chairman of the National Vitiligo Foundation (www.nvfi.org) for speaking with us by phone yesterday, during our monthly board meeting.
A researcher and lecturer on the subject of Vitiligo, Dr. Boissy has traveled internationally, most recently to Africa, providing valuable information about Vitiligo.
During our thirty minute conversation, Dr. Boissy shared a significant amount of enlightening information about Vitiligo, ongoing strategic efforts to develop resources, approaching benchmarks in scientific research, and the partnership of the National Vitiligo Foundation in our efforts in Maryland.
"The National Vitiligo Foundation is devoted to increasing public awareness of the disease, advocating for patients with the disease, and supporting basic science and clinical research on the disease." [Source: National Vitiligo Foundation].
Important to the missions of MVSA and NVF is the development of resources; dermatologists, psychologists, social workers, and other resources for persons living with Vitiligo. MVSA is working now to develop such a list for members.
If you're a resident of Maryland living with Vitiligo, join the Maryland Vitiligo Support Association blog today.
A researcher and lecturer on the subject of Vitiligo, Dr. Boissy has traveled internationally, most recently to Africa, providing valuable information about Vitiligo.
During our thirty minute conversation, Dr. Boissy shared a significant amount of enlightening information about Vitiligo, ongoing strategic efforts to develop resources, approaching benchmarks in scientific research, and the partnership of the National Vitiligo Foundation in our efforts in Maryland.
"The National Vitiligo Foundation is devoted to increasing public awareness of the disease, advocating for patients with the disease, and supporting basic science and clinical research on the disease." [Source: National Vitiligo Foundation].
Important to the missions of MVSA and NVF is the development of resources; dermatologists, psychologists, social workers, and other resources for persons living with Vitiligo. MVSA is working now to develop such a list for members.
If you're a resident of Maryland living with Vitiligo, join the Maryland Vitiligo Support Association blog today.
Saturday, May 8, 2010
Happy Mother's Day
On behalf of the Maryland Vitiligo Support Association, I extend a sincere "Happy Mother's Day" to every mother in the Maryland Vitiligo family.
Carlos Fields
Carlos Fields
Sunday, April 25, 2010
The Mission
The Maryland Vitiligo Support Association is a nonprofit organization established to raise awareness of Vitiligo in the community and to provide a system of support to individuals with Vitiligo in Maryland. The efforts of the Maryland Vitiligo Support Association focus on three primary areas: (1) Education; raising awareness of and demystify Vitiligo through educational activities and sharing of personal stories, (2) Support; promote the emotional and psycholodical well-being of individuals with Vitiligo through the advancement of healthy lifestyle choices and coping strategies, and (3) Networking/Facilitation; encourage and facilitate networking of individuals with Vitiligo, thier families and their friends through special events, activities, and social gatherings.
Friday, April 9, 2010
WELCOME
Dear Vitiligo Family & Friends:
I want to welcome you to the Maryland Vitiligo Support Association (MVSA) blog page. This blog page is intended to serve as an information and communication resource tool for people living with Vitiligo, their family and friends. In as much as we share this common condition, this blog and the future of this new association is dedicated to helping ourselves and others lead productive and healthy lives.
Where ever I go and when opportunity avails, I introduce myself to other people who have Vitiligo. It's nothing for me to say, "Hello...I see you have vitiligo. I have it too." After what is usually a very pleasant introduction, we usually talk briefly about how long we've had it, efforts at treatment, or just shoot the breeze. After having done this for years, I've come to realize that its therapeutic for me. It's my way of realizing that I'm not alone and there's someone who understands. And with so many differences among us, I also get a chance to learn. And from these brief engagements, I've also learned that so many of us are suffering emotionally from the shrapnel of this condition; the stares, the rejection; the misinformation; the discrimination; and isolation.
Once while working as a bartender, I was approached by a very nice couple, who mentioned they noticed my hands earlier and wondered if I could help them with something. I agreed. Upon further talking with them, I learned they had a young daughter on whom they had noticed the progressive spread of vitiligo. The girl was in elementary school and was having a difficult time coping. After telling me their daughter's story, they simply asked, "What can we do to help her?"
So, inspired by the love of my mother, to those parents and the many persons I've introduced myself to over the years, including the two I met this week, and to our friends and family, this blog and the forthcoming organization is for you. You are invited to join and contribute to this blog and organization.
You are not alone.
Sincerely,
Carlos N. Fields
I want to welcome you to the Maryland Vitiligo Support Association (MVSA) blog page. This blog page is intended to serve as an information and communication resource tool for people living with Vitiligo, their family and friends. In as much as we share this common condition, this blog and the future of this new association is dedicated to helping ourselves and others lead productive and healthy lives.
Where ever I go and when opportunity avails, I introduce myself to other people who have Vitiligo. It's nothing for me to say, "Hello...I see you have vitiligo. I have it too." After what is usually a very pleasant introduction, we usually talk briefly about how long we've had it, efforts at treatment, or just shoot the breeze. After having done this for years, I've come to realize that its therapeutic for me. It's my way of realizing that I'm not alone and there's someone who understands. And with so many differences among us, I also get a chance to learn. And from these brief engagements, I've also learned that so many of us are suffering emotionally from the shrapnel of this condition; the stares, the rejection; the misinformation; the discrimination; and isolation.
Once while working as a bartender, I was approached by a very nice couple, who mentioned they noticed my hands earlier and wondered if I could help them with something. I agreed. Upon further talking with them, I learned they had a young daughter on whom they had noticed the progressive spread of vitiligo. The girl was in elementary school and was having a difficult time coping. After telling me their daughter's story, they simply asked, "What can we do to help her?"
So, inspired by the love of my mother, to those parents and the many persons I've introduced myself to over the years, including the two I met this week, and to our friends and family, this blog and the forthcoming organization is for you. You are invited to join and contribute to this blog and organization.
You are not alone.
Sincerely,
Carlos N. Fields
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